T1D

This overview is an introduction by the NATIONAL BARISTA to help you get to know more about this community. To join the village, learn more and register as a PIONEER MEMBER today.

Hello Parent Members! 

You can find me in the MPC community app under the @ChiefBarista ID. That's right, I'm also the CEO and founder of MyParent Cafe. My daughter was diagnosed with T1D when she was 3 years old. We were lucky, we may have been only 24 hours away from losing her. Here we are now 7 years later and we've settled into our new normal.

Normal? Just when I think we have things figured out, something changes. The 'math' is always changing! Body mass, hormones, delayed carb absorption (curse you nachos), insulin formula differences, hardware changes, software changes, technology configuration, swimming, skin care, needles, airport security, event security, nurse school orders, our go-bag, Halloween and holidays, and lets not forget the medical appointments - we're truly ALWAYS on duty.

MyParent Cafe was largely based on this journey. After helping many parents of newly diagnosed children 'figure it out' long after they left the Emergency Room, I decided there had to be a better way to share all this tribal know-how. I'm excited to found the T1D Village. What I know now, I wish I knew back then. And what I don't know now, someone with a decade more experience can help.  

This platform is designed to allow members to ask questions, get answers, feel supported and get recommended solutions. Other 'social media' communities have been co-opted to do this, but none have been purpose built with parents in mind. The AI Coparent - IRIS - is especially helpful summarizing all of the current wisdom out there whenever you need immediate support. From there, it's up to us to build a growing network of parents to our Village.

My role as a leader of this village is to help it grow and ensure that we keep a helpful and supportive environment. I'm looking forward to connecting more in the app when you sign up to join as a Member.

Thank you for joining us.

@ChiefBarista

If you know a parent of a T1D child, please send them the link to this page so that they can join. MyParent Cafe - T1D - doesn't replace any of the existing social media communities. We see this as a complimentary but ultimately safer and more helpful platform.

We're also looking for a few more Baristas for this T1D community. Baristas are the moderators and community stewards. I do hope to invite a mix of parents, medical providers, solution providers and non-profit representatives to help ensure the community needs are met.

Finally. We are looking for T1D PERK providers. Any product, service or non-profit dedicated to helping to meet the needs of the T1D parent community are invited to submit an interest form on our PERK page. We'll be sure to get back to you right away.